Long Night and Day

We finally made it to the neurology floor at 2am (yes, a FIVE hour waiting time in the ER).  Don't get me started.  Then it is another 30 minutes transferring all the info to the new nurses and doctors.

Sydney gets to pick who sleeps in her room.  She selects daddy... a wise choice as I am notorious for being cranky in the middle of the night.  Doug comes up, and I head down to Jenson's room thinking how nuts it is that both our kids are in the hospital at the same time. 

Jenson's breathing is much more labored and his body is starting to shut down.  It is heartbreaking.  I give him a kiss and lay down to sleep around 3am.  Of course sleep is not coming easily so after more than 30 minutes I finally start drifting off.  At 4am the room phone rings.  I am thinking "oh no, it is Doug and something is wrong", but instead the person says "Sorry wrong number."  Really?  At 4am?  Tonight of all nights?


I head up to Sydney's room in the morning, and Doug heads down to Jenson's room.  My friend Melissa brings croissants and coffee/tea and delivers to both rooms.  She stays with Sydney and me - thankfully because I am so brain dead and the conversations with the doctors are clearly important.  She helps take care of both Sydney and me and makes sure I remember all the important points.  What a gift!


Sydney's concussion symptoms return today with nausea, pain in the back of the head, and blurred vision that comes and goes.

The doctors finally make it around and tell us the tremors don't follow a seizure pattern based on the type of movement or the length of time they lasted.  They will do an EEG as outpatient soon, but that is really more to calm our nerves.


So, after all night and day at the hospital we have no answers to the "neck hurts", hour long strange tremors, and inability to talk at the end of the tremors.  There are several labs pending but those will take several days to grow out (or should I say hopefully not grow out).  They are saying it could be stress related...well we all certainly have reasons to be stressed.  We are supposed to "watch and see" if she has another episode.  More health uncertainty is not a welcome visitor right now.

I have never been more tired, cranky, overwhelmed, angry, sad, and thankful the tremors stopped in my life.

Kristin