Help Wanted

People often ask, "How can I help?".

Because histiocytosis is so rare, there is limited funding for research. Until now, we had the benefit of research dollars given years before Jenson was even diagnosed.

Jenson's case is unique, and we believe he may have a genetic case of LCH. When I talk to the doctors about, "Could this be true? Could we test for genetic LCH?" their reply is "We don't have a test for it. There is still so much we don't know about LCH." In fact, they told me the research on LCH is where leukemia research was about 20 years ago.

Translation? Jenson is a human guinea pig. It is anyone's best guess on what to do next.

It is devastating to watch as your child suffers and feel so helpless.

The Histiocytosis Association is an organization dedicated to research and supporting families affected by this disease. It has a 4 star charity rating which is the highest honor for a non-profit. Our family will be starting a support group in Texas through the Histiocytosis Association, and we have been impressed by their level of professionalism and standard of excellence.

You can help by donating to:
Histiocytosis Association
332 North Broadway
Pitman, NJ 08071

Any dollar amount makes a difference in helping kids like Jenson fight this crazy disease.

Jenson continues to be our inspiration with his incredible resiliency, great sense of humor, and joyful approach to life! Each day he teaches us new things about life and love.

With your help, we hope to be learning from him for years to come!

Kristin