Quick update... Jenson's leg pain seems to be getting better. :-) We're very thankful for that blessing.
Our suspicion now is that the tapering down on prednisone from 20mg per day to 15mg per day was what caused the intense leg pain. He's only supposed to be on this high a dosage for a few more weeks and then stop taking it. Good insight - apparently we'll need to do a pretty slow taper off of it. Prednisone is a miracle drug with some pretty nasty side effects, but it definitely helps Jenson so we'll take the side effects!
Our next "expected" big medical day (outside of his next major chemo treatment) is May 26 when Jenson will have his PET scan where they will get a good look at things. The timing is actually really good as he will have had several courses of his new chemo meds, and we'll be able to see how he's responding. He does have to be put under, so please pray for safety and protection for him.
On a cute note, he's recently discovered "rice" and wants to eat it all the time. He likes it with pepper. Lots of pepper. Most 2 year olds hate pepper, so it always makes me laugh when he asks for "more pepper please".
He's continuing to get stronger everyday, so thanks to everyone for all your prayers for healing for Jenson. Keep praying for a miracle cure from this disease!
Kristin
Time to Remember
12 years ago
Hi Kristin, we've been praying for you for a long time, and although I usually don't sign on as a follower of the blogs I read, this is a first. Your children are a blessing to many, and I hope to meet them someday. Blessings, my friend.
ReplyDeleteCheryl - thanks for your prayers and for supporting us through this journey!
ReplyDeleteKristin